Thursday, November 17, 2011

Mima's Wedding

I know, I know, Mima's wedding was on October 1st and I'm JUST posting it now, but better late than never!
Here are some pictures from her day...

Family Picture!

The happy couple!

 There was even a rainbow outside after the ceremony!

 Cheers!

 VERY funny story!  After the salad course they brought out these little raspberry sorbets to cleanse our palattes.  They were so yummy.  Alexander liked them so much he had two!  Well, come to find out, these weren't raspberry like we thought.  They were cabernet! 

 What a beautiful couple...isn't Mima's makeup just fabulous?  Hint, hint!

Mima and Don have been going dancing since they met so they tore up the dance floor all night!

Me and my beautiful Great-Grandma Guggino!

Sunday, November 6, 2011

2 Updates

Update #1: WE HAVE POWER!!!!! YAAAAAAAAAAAY!  After 7 days of no power, we got a call from our very excited neighbor late Friday night saying, "WE HAVE LIGHTS!"  This was amazing because they had just extended their estimate saying Sunday by noon we'd have power.  So, praise God, we are home!  A giGANtic thank you to Barry and Natalie for hosting our family for the entire week!  I will be doing another post soon with all of the funny things that happened.  A little sneak peek: I almost killed my mother-in-law!  (No really...I almost actually killed her!) 

Update #2:  I got the report back from Alexander's diagnostic pediatrician out in Boston and they do NOT think he has autism!  They are leaning more towards ADHD from what I can gather from the report.  So, even though ADHD presents many challange, we are a little relieved to hear that.  In saying that, they are continuing to watch him over the next few months.  We have another appointment in December.  Thank you for your prayers!

Wednesday, November 2, 2011

More tricks than treats for our halloween!

Most of you know or have probably heard, MA has been declared a state of emergency by Obama with this last snow storm. We got 12+ inches of wet, heavy snow that stuck to all of the leaves that were still on the trees.  That resulted in downed trees, limbs, power and communication lines and basically a complete mess.  We have been without power since Saturday at 5pm.  More than 80% of Springfield is without power...3 million total between MA and CT.  By the Grace of God, Brad's mom never lost power.  We have been here since Sunday morning.  They are forecasting that we will have power back by Friday at noon.  Cross your fingers!  All schools have been canceled through the week and they actually CANCELED HALLOWEEN!!!  The local mall has this thing called "Mall-O-Ween" each year so we decided to go there to do some trick-or-treating along with 3000+ other people!  It was nuts, but I think we made a good decision.  Alexander had fun and we ran into some friends from church!  Their 3 year old son who is friends with Alexander dressed up as a conductor!  Alexander was Thomas the train!!!  Their costumes were completely unplanned as was our meeting.  Here are some pics of the storm and of our Mall-O-Ween experience.  Oh, to top it all off, Alexander now has a stomach bug and was throwing up and having diarrhea all night and today.  Thank you in advance for all of your prayers!

hugs...

Tree in our front yard.  Usually the branches are about 7 feet off the ground! 
 
 You can see how much snow we got. 

 Barry and Natalie's neighbor's tree that is now in their yard!

Alexander tucking into some waffles and reading over the "Cars" DVD case!

 Alexander and his friend Ben at Mall-O-Ween!  Do I spy an envious look from the conductor???

 My little Thomas the Train!  I'm glad he got to wear his costume.  I spent SO long on it! 

Of course he got tired of wearing it so Barry decided to put it on!  Alexander thought Djadiew made a great Thomas!

 Maybe next Halloween will have more treats than tricks!

Tuesday, October 4, 2011

Evaluation results...sort of

Well the day finally came, but my 4 am alarm came waaaaaay too soon!  Brad and I left at 5:15 this morning for our 8:30 am appointment in Boston to find out the results of Alexander's evaluation that he had last week.  We beat the traffic and got there an hour and a half early.  So, we got some breakfast at Dunkin Donuts and walked around, watching the morning hustle and bustle of downtown Boston on a Tuesday morning!
We met with Dr. Levy, the pediatrician that evaluated Alexander last week.  She had a lot of really great things to say about Alexander which I'll get to later, but I won't keep you in suspense.  Basically, they don't have many solid conclusions about what is going on with him.  She said that he does show some "red flags" for signs of autism, but because he has so many positive qualities and behaviors they make them a little less "red flag-y!"  (She definitely did NOT put it that way!)  They are most concerned with his sensory seeking behavior, his social issues including his less than normal eye contact, and his speech delay and speech apraxia.  Speech Apraxia is a common speech impediment that can be corrected with therapy.  Danielle (his speech pathologist) concluded that Alexander most likely has this.  I copied and pasted some info from Google on what apraxia is.   "Childhood Apraxia of Speech is a motor speech disorder. For reasons not yet fully understood, children with apraxia of speech have great difficulty planning and producing the precise, highly refined and specific series of movements of the tongue, lips, jaw and palate that are necessary for intelligible speech.  In typically developing speech, children make word attempts and get feedback from others and from their own internal systems regarding how “well” the words they produced matched the ones that they wanted to produce. Children use this information the next time they attempt the words and essentially are able to “learn from experience.” Usually once syllables and words are spoken repeatedly, the speech motor act becomes automatic. Speech motor plans and programs are stored in the brain and can be accessed effortlessly when they are needed. Children with apraxia of speech have difficulty in this aspect of speech. It is believed that children with CAS may not be able to form or access speech motor plans and programs or that these plans and programs are faulty for some reason." 

Some of the positives they see in Alexander is that he has a wonderful sense of humor!  At the evaluation, he put some stickers over his mouth and was trying to talk.  He was doing his funny, forced laugh because he knew he was being funny!  Also, he is definitely connected to me and Brad.  He wants us to be involved in his play by showing us things and physically turning our heads to direct our attention to something he wants/needs.  Dr. Levy also said that he is simply a joy!  She actually had a great time doing his evaluation which is rare.

So, they want to follow up with Alexander in January to check in and see if anything has become more clear.  He will have been in preschool for about 2 months by then and they want to see how the structured environment is for him.  Brad and I surprisingly feel really good about this conculsion for now.  We respect that they don't want to slap a label on him just for the heck of it.  They really want to take their time, get to know Alexander better, and give him a diagnosis that really fits him instead of just being convenient. 

Yesterday we had Alexander's preschool evaluation.  I'm SOOOO excited to share that he WILL be receiving services for speech, occupational therapy and his social challenges!  YAY!  When he turns three on November 9th he'll start preschool, going 5 half-days a week in an integrated classroom.  Dr. Levy was thrilled about this and she was even more assured that NOT giving Alexander was the right move because even without one he still will be receiving services. 

Again, thank you so much for checking in and being involved with this long, frustrating and emotional draining proccess!  Our little family has received so much encouragement and prayers over the past year.  We are all in a very good place and excited about our next venture of preschool!  We of course will continue to give you updates but feel free to check back anytime! 

Love and hugs to you...

Wednesday, September 28, 2011

Alexander's Evaluation and Aquarium

So, the day finally came...and everything went great!  Basically a diagnostic pediatrician played with Alexander for about 40 minutes.  She looked at how he transitioned between activities, how he played with the toys, and how he interacted with her and also me and Brad.  There really isn't much to say other than that because we don't know anything yet.  We'll find out the results and discuss what the doctors saw next Tuesday.  We also visited the New England Aquarium while we were in Boston, so here are some fun pics!  Thanks for all of your prayers, thoughts and well wishes. 
hugs...

Huge turtle...I think it was bigger than Alexander!

 We got to hold star fish! 

 Looking at seals swimming underwater!



This is a touch tank with sting rays and sharks.  The sharks don't come around very often.  We only saw one of them once.  Alexander loved it though!  You can see when he actually touches one
because he jumps and pulls his hand out of the water!

Sunday, September 25, 2011

Evaluation Update

Last time I updated everyone I was filling out the application for Alexander to be evaluated for Autism.  I sent in his application a month ago, and usually it takes 4-6 weeks to get a call with the appointment date which is usually 6-8 weeks out from there.  So, we were still looking at a 2-3 month wait from now.  I got a call last Monday from Tufts Floating Hospital in Boston (where Alexander will be evaluated) and they had a cancellation for the next day!  (Last Tuesday)  Well, I immediately took it.  Brad wasn't able to get off work with such short notice but Alexander's therapist, Heather, rearranged her entire day and came with me!  She even got to my house at 6 am.  I know, she's amazing!  The evaluation is done in 3 appointments.  The first one is basically a question/answer time with us and the pediatrician to get a better idea of our concerns and to get to know Alexander.  We were in a room with a double sided mirror and a couple of students and doctors were observing him while we were talking with the diagnostic pediatrician.  The second one is this Tuesday, the 27th.  That is the actual test and evaluation.  (Prayers please)  The third one is October 4th and we discuss the results.  (More prayers please!)
A lot of people have been asking me how I'm feeling.  It is so mixed, really.  On one hand I am so thrilled that he got in so soon, but on the other hand, oh my goodness.  My son is being evaluated for Autism.  Right now.  Not in the future.  It's not something we're just talking about anymore.  It's real.  It's hard.  It's scary and I have no idea how I'm going to handle this.  However, I know that God picked me to be Alexander's mom and Brad to be his dad.  God has been preparing me for this my whole life.  I have a peace from Him that we are ready as a family to deal with this and anything else that comes our way.  I feel strong as a mother, knowing that only the strong get "dealt a hand like this."  (At least that's what I tell myself!!!)  We have such a strong support system around us.  Between all of Alexander's therapists, our parents, other family, friends and people from church we are covered pretty much everywhere!  I will make sure to update the blog after next Tuesday and also the following Tuesday when we get the results.  Thank you for your specific prayers.  We love you and are so happy you are in our life!

hugs...

The Big E

If you live in New England, then you know about and have experienced the Big E!  It is one of the most anticipated events of the year locally and one of the top 10 events nationwide.  People talk about it for WEEKS in advance and mentally prepare (and finacially prepare) for all of the food, fun, and shopping!  Basically the Big E is like a town fair multiplied by 1,000!  It is a fair that lasts for 3 weeks.  Vendors come from all over the country to display their crafts, products and "as seen on TV" stuff.  There are concerts as well.  This year Reba is performing and Brad and I saw "Daughtry" a few years ago.  There are state buildings...one for each of the New England states.  All the stuff that is special about the states are in the state buildings.  For example, Maine has fresh lobster rolls, Vermont has all sorts of maple syrup stuff (maple syrup cotton candy included!)  Local vendors and artisans from their home states fill the buildings.  And the food...oooooooh the food!  Last year they came out with the "Crazy Burger."  It is a bacon cheeseburger.  Not so crazy right?  WELL...substitue the bun for a toasted glazed donut and there you have it...the best darn burger ever!  This year they had "Peanutbutter and Bacon Pizza!"  (Subsitute the sauce for peanutbutter.)  We didn't try it, but from what everyone said, don't knock it till you try it!
The infamous Crazy Burger!


Each year our church volunteers with The Hollow Creek Cider Mill in the VT building.  We work shifts at their booth and they pay the church for each 4 hour shift filled.  Its a huge fundraiser for our church.  Plus, we get free admission and parking which saves us about $60!  They make fresh apple cider donuts, apple pie (either a la mode or with sharp VT cheddar cheese), apple crisp and the best apple cider you've ever tasted.  Their specialty is apple cider slushy!  Soooooooooo good!  We volunteered in the morning and enjoyed the Big E for the rest of the day.  Natalie and Barry dropped off Alexander after our shift. 

Me and Alexander after a parade.
He caught two bead necklaces that were being thrown from floats.

Daddy and Alexander eating fried dough.  (Mommy MAY have had a bite too!)

They also have lot's of animals and petting farms.  You can ride on an elephant and camel.  Here is Alexander taking his first camel ride!  He was so excited- he didn't stop smiling from the minute he got on!  You have to zoom into the first picture...It is a look of pure wonderment!


I love this one!!!




Friday, August 26, 2011

"Tornados, and Earthquakes, and Hurricanes, OH MY!"

Ok, SERIOUSLY???  When we moved to western Massachussets the biggest natural disaster threat was snow!  Since June we have had a tornado, an earthquake, and now we are preparing for a hurricane?  WELL FOR PETE'S SAKE!  Brad and I got hit be 3 hurricanes in Florida one year.  Here are some things that we learned.

1. Make sure you have enough food that you can make without electricity.
2. Have plenty of ice for your perishables.
3. Get yourself enough gas for your car and generator before it hits. 
4. Connect with some friends, hunker down together and have a "hurricane party!" 

Stay safe eveyone! 

Saturday, August 13, 2011

Close, but no cigar! Or should I say...

...close, but no potty. Alexander and I were at Kholes yesterday and when we passed through the kids section he saw a display of big boy underwear. Well, Thomas the Train, Buzz & Woody, and Lighting McQueen certainly caught his eye! When I asked him if he wanted to wear big boy underwear instead of his diaper he said, "Sha!" (In Alexander language that is "Yes") So, I asked him a bunch of questions about going pee-pee on the potty and no more diapers etc. just to make SURE! Well, he gave me all of the right answers so we got two packs. (They were buy one get one 1/2 off so of course I got two packs!) He chose Thomas and Woody & Buzz. Well when we got home he did NOT want to wear them and chose his diaper. So, I put them up on his shelf. This morning he wanted to wear his big boy underwear, so off came the diaper and on went a pair of Woody underwear. Then he was upset that he didn't have Buzz too, so on went a pair of Buzz ones over the Woody pair! So we had a looooooong talk about what to do BEFORE he goes pee-pee. Every 2 minutes I asked him, "Do you have to go pee-pee? Do you want to go sit on your potty?" Well, after 30 minutes and he looked at me and said, "Pee-pee!" Well, I jumped into action! With mind racing and adrenaline pumping I scooped him up, ran to the bathroom, thinking, "This is IT! He's gonna do it!" I took his underwear off and realized that they were soaking wet. Oh well. So, on went the diaper again! My thought...at least he knows WHEN he goes pee-pee! 

Thursday, August 4, 2011

Four, Five, P!

Alexander has been doing great with his speech.  The other day we were reading the Dr. Seuss book, "Ten Apples Up On Top" (I feel like if I say, "ten apples up not one will drop" one more time my head just might explode!) and he was saying the last word or two of every sentence.  He was saying four and five with the "f" sound and that was the first time I had heard it.  When I asked him to say fish he still said, "P!"  I thought it was so funny that I had to get it on video...enjoy!



I decided to do a second take and here is what happened!


Happy 98th birthday!


No that's not a typo! Grandma Dietrich (Eileen's grandma) who is Alexander's Great, Great Grandma tuns 98 today!  Alexander has a message for YOU Grandma! 





Here's to more years to come!  Lot's of hugs and love...

Saturday, July 16, 2011

Thanks Kristen and Ian!!!

As you may know, some friends of ours gave Alexander a trampoline that they weren't using.  We had them over for dinner to say thank you and it was so fun!  It is amazing to see how the boys have all grown so fast.  They had a great time together once again!
This is Alexander and his friends Sean and Aidan in August of 2009.
  
This is Alexander and his friends Sean and Aidan in July of 2011!


They also have another little one!
Sorry we didn't have a little pal for you to play with too Evan!

Kristen and Ian...we can't say thank you enough for giving Alexander the trampoline.  As you saw that night he's a pro!  We really appreciate it!

Little tid-bits

Here are some random tid-bits!

 I never thought I'd want a smart phone...until Brad got one! My phone broke and I needed to get a new one anyway, so I figured I'd go for it. I got it a few weeks ago and I still feel like the stupid thing is "smarter" than I am, but I'm getting there! I downloaded a kids game where animals zoom accross the screen and you have to touch them to collect them. Alexander LOVES it.  Besides it being incredibly addictive it helps with his fine motor skills too!
  I thought this picture was too cute not to take! 
Here are my boys playing on the phones!

We got a bird feeder.  Can you see it outside the door?
Alexander is eating breakfast with the birds.
 He loves to watch them, but he doesn't really get that he as to talk quietly or else they'll fly away yet!


I think you can piece this puzzle together. Let's go over the clues. Nail polish...nail polish aaaaaaall over the bottle...little nail polish covered finger prints right next to the bottle...hmmmmm...if you said, "Alexander got into Steph's nail polish and dumped it all over himself, the floor and his clothes then spread it around like finger paint" then you guessed right!  There I was sitting on our side porch sipping my morning coffee and admiring the sunshine filled morning (and my feshly pedicured toes) and I heard (or thought I heard) Alexander quietly playing in his bedroom. It's a rare occurance but it has been known to happen once or twice before. So I come in and find Alexander NOT in his bedroom, but sitting in the middle of the living room in a puddle of red nail polish. I'm not kidding, it looked like he had red gloves on. His cheeks are covered, legs and arms are covered and it is all over the floor as well. The kicker is, this isn't regular nail polish. I got the new nail shelac that has to cure under a UV light and it's incredibly sticky. (It also costs $15 per bottle.) I had to use 3/4 of a bottle of remover to get it off my screaming 2 year old. Ok, I may have been screaming a little bit too! I was so furious (at him and me for accidentally leaving it out) that I couldn't bring myself to take a picture of him. I did however calm down enough to get a picture of the evidence!

Saturday, July 9, 2011

Memories and Happy Birthday

Every summer my dad's family would take a summer vacation to the beautiful Ithaca, NY.  We stayed in a cabin at Robert Treman State Park.  (Only the best campground EVER!)  There are zillions of amazing memories as we returned year after year... the incredible waterfall swimming hole, walking the gorges, swinging contests, candy runs to Tops Supermarket (WARHEADS!!!), Leah and I performing the backup vocals to Jimmy Buffet's "Cheeseburger in Paradise" song on the boat, making new friends seconds after we pulled in, writing in the family scrapbook, catching and naming tadpoles (I will never forget you George and Georgina!) and the list could go on and on and on.  One thing I totally forgot about until this week when I had some accidental wax overflow was that Leah and I would burn candles and make these fun wax creations.  We would hold candles over other burning candles and let them drip and swirl into big blobs.  I thought it would be appropriate to post this today in honor of Leah and her birthday! 

HAPPY BIRTHDAY LEAH!!!
Here's to the memories we share and the memories to come...Love ya sis!

Thursday, July 7, 2011

"Pappy's Bo"

Translation..."Cappy's Boat!"  Alexander calls my dad Pappy right now because he can't do a lot of "C" words yet.  We were a little nervous about taking Alexander out for a couple hours on a long sail, but he had been (and hasn't stopped) talking about "Pappy's bo" so we knew we needed to take him out.  So, my dad suggested we just motor out of the harbor and around Annapolis for 30 minutes or so.  Alexander LOVED it!  He actually sat still for the first 25 minutes just taking it all in.  Of course, the last 10 minutes we had to pull out the chips to bribe him to sit still just a few more minutes! 
 Alexander and his Pappy! 


 Just taking in the sights


Out come the potato chips!  Whatever works right?

It was a fun time on the boat.  I didn't even fall in this year!

4th of July

What a wonderful weekend we had in Annapolis! As always there were a TON of family there. (That just means there's lot's of love to go around!) My dad, Eileen, Grandma Dietrich (Eileen's Grandma), Jamie, Zoli (their adopted son from Hungary), Joel, Bri, Isaac, Eli, Brad, myself and Alexander were all under one roof. Alexander had SOOOOOOOOO much fun with Isaac who is also 2. They got really close really quick. Isaac referred to Alexander as, "his Alexander" and would correct anyone who called him Alex by saying, "It's not Alex, his NAME is Alexander!" Here are some pictures of our trip.


 This isn't Alexander's first trip on an airplane, but it is his first trip where he knows what's going on!  He was so excited to be, "High in the sky" as he puts it!


 Grandma Dietrich...almost 98 years old and still fabulous!

See all of those people in the pool?  Ya, that's all us!  From left to right...
Eileen, Joel and Isaac, Bri and Eli, Zoli, Brad and Alexander, Sarah (family friend) and Jamie

 Cheeeeeeeeese...

 Alexander and Isaac chillin' out together and eating some Cheese Puffs

 "Cheers!"

 Jamie and me being silly before Karaoke! 

Jamie has been on bed rest for the past 2 1/2 months and this was his debut back to Ebb Tide!  He was like a celebrity in that place.  He rocked the house until 2am, but we old folks called it a night at 11.

A few mornings Brad, Alexander and I took a walk down to the beach.  Since Alexander got up at 5 freakin 25 the first morning we figured we'd make the best of it!  It was wonderful family time and we got some beautiful pictures.

 My favorite.  Put your orders in folks...I'm definitely printing this one!

 Looking for crabs

Me and my boy

 The boys blowing bubbles

 "Oooooooooh...big bubble!"

Ok, so most of you don't know, but I love puzzles!  (I know I'm such a dork!)  I never do them because I have so much other stuff to do all the time, but hey...I was on vacation!  Jaime had started this 1000 piece puzzle of New York State and over the weekend I finished it!  At this time everyone was in the living room hanging out and I didn't want to be alone in the other room, so I set myself up in Grandma's chair!  If Leah was there we would have had that done the first night! 

 "What's up?"

 A favorite activity...riding down the ramp at lightning speeds!  Isaac was a little more safe and would put his feet down, but Alexander just barreled down!  (He's not naked I promise!)

Jamie played with that Mickey Mouse toy when he was little and the boys loved it.